Today has been awesome. Rewind to earlier this week... I was exhausted. Couldn't sleep enough. I'd go to bed super early, sleep hard & wake up exhausted. The gym was excruciating. Usually once I'm there I pep up & get into the class. Wednesday morning was particularly hard. EVERY MINUTE. But then-- for some reason, yesterday I pepped up. Felt good. So today I went to my normal spin class & then went back for a new Core class my gym is offering. They did this big event today to bring in the new classes... it was super fun. I wanted to stay for more but didn't want to push it.
I can handle these highs & lows. BUT.... I have this gnawing fear in the pit of my stomach, every time I go through a low point, that its going to stay... I don't know how I'd live like that! Tuesday night I went to bed BEFORE my kids did. I was trying to finish up some laundry before I headed to sleep & I could barely lift the basket. That kind of exhaustion, day after day, would be too much for me to handle. And I know a lot of the girls from my group deal with that on a regular basis. They are rock stars.
Oh! Oh! I almost forgot! I met a lady at the gym today who is 50+ and SHE had problems with her kidneys in her late 30's. Went on prednisone, went GLUTEN FREE, dealt with the kidney stuff off & on for several years and has been TOTALLY fine since she was 35. She's started eating gluten again a while back, wasn't feeling well, was putting on weight, her dr. told her to go back on completely gluten free & she looks & feels awesome. You seriously have to look close to believe that she's 50. She's my new hero. I know it doesn't work like that for everyone but I hope that my story is like her story when I'm 50.
Lastly... I've now been on my 30mg of pred for 3 weeks. My plan is to drop to 20mg tomorrow. I did my bloodwork & 24-hour urine yesterday. I see Dr. B this Friday. I did a test strip this morning and there's almost no protein in my urine (YAY!) so I think I'm going to go ahead and drop to 20mg. What's still TBD is if I'll be brave enough to tell Dr. B that I'm weaning myself faster than she told me to. I'm totally 100% confident with my decision... but... I have authority issues. Just a little quirk I have!
I'm now up 15 lbs. I can't WAIT to get low enough on pred that I can start to loose it. I hate looking at pictures of myself. I try to not worry about it but its hard.
1 comment:
I've done a tiny bit of reading about gluten free and FSGS, but haven't seriously considered it. Yet. Perhaps I should, I don't suppose it'd do me any harm to try and see if it had any effect. Hmmm.
Also, I totally agree about the weight. I'm on 30mg at the moment and have put on 8kgs. :( I am SO excited to get to 10mg or below! Goodbye extra weight! :D
Post a Comment