I saw Dr. R on June 25th & since I was still doing well I was able to drop my Cyclosporine from 150mg 2x a day to 100mg 2x a day. He told me to retest in 4-6 weeks. With our trip to Utah, it ended up being 6 weeks. I went down to the med center & did labs this past Thursday...
To back things up, I relapsed last year (weaning off prednisone) during out trip to Utah. Before I even knew I had relapsed, I started having anxiety attacks again. I started putting together that my anxiety was worse when I was out of remission. ANYHOW, I started having a lot of anxiety again in Utah (this year), and especially when we got home. I had also gained weight & was too chicken to take a diuretic to figure out it if was water or fat. (I think it might possibly be the first time in history and woman was wishing the extra weight was fat & not water).
So I headed down to the med center lab on Thursday, gave a bazillion viles of blood, some pee & waited for my results to post on MyChart. Friday, I was a WRECK. I was so anxious I could barely see straight or function. I was prematurely devastated that I had relapsed & was going to have to start ALL OVER AGAIN!
So.... then I checked MyChart around 5pm. And... IT WAS GREAT NEWS! .1G (100mg) - which is in the "normal range." Albumin (3.7) is good. Still in remission. Freak out over. PHEW.
Hoping to talk to Dr. R tomorrow & reduce my dose further. Help me out & keep on - a - prayin!
