Sunday, August 11, 2013

Test Anxiety

I saw Dr. R on June 25th & since I was still doing well I was able to drop my Cyclosporine from 150mg 2x a day to 100mg 2x a day.  He told me to retest in 4-6 weeks.  With our trip to Utah, it ended up being 6 weeks.  I went down to the med center & did labs this past Thursday...

To back things up, I relapsed last year (weaning off prednisone) during out trip to Utah.  Before I even knew I had relapsed, I started having anxiety attacks again.  I started putting together that my anxiety was worse when I was out of remission.  ANYHOW, I started having a lot of anxiety again in Utah (this year), and especially when we got home.  I had also gained weight & was too chicken to take a diuretic to figure out it if was water or fat.  (I think it might possibly be the first time in history and woman was wishing the extra weight was fat & not water).

So I headed down to the med center lab on Thursday, gave a bazillion viles of blood, some pee & waited for my results to post on MyChart.  Friday, I was a WRECK.  I was so anxious I could barely see straight or function.  I was prematurely devastated that I had relapsed & was going to have to start ALL OVER AGAIN!

So.... then I checked MyChart around 5pm.  And... IT WAS GREAT NEWS!  .1G (100mg) - which is in the "normal range."  Albumin (3.7) is good. Still in remission.  Freak out over.  PHEW.

Hoping to talk to Dr. R tomorrow & reduce my dose further.  Help me out & keep on - a - prayin!


2 comments:

Michelle said...

Thats great news. Glad to hear your doing well. You made me lol with your comment about wishing for fat rather than fluid. I often think 'gee I hope my ankles are just getting a bit fat' rather than the old fluid/neph syndrome kankle! :)

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