Zero.
Zero...
ZZEEERRRROOOOO!!!!!
Zero is just the most perfect, glorious number. Don't you think? Well you do if you have kidney disease & you're talkin amount of protein in the urine.
I've known I was in {at least} partial remission for over a month. I hit that *magic number* (whatever it is) in early May. I know this because the last diuretic pill I took was the night we flew in to California for our Disneyland trip. I walked around for 3 days, in warm weather, eating processed food, and I didn't swell. It was AMAZING!
After I stopped swelling, I stopped taking my Lisinopril (BP medicine). Dr. R had only put me on that to help the Cyclosporine since I wouldn't take Prednisone with it. It's been so lovely to just be down to taking my little thyroid pill & then my cyclosporine.
And here I am, down to complete, 100% remission. My dr. honestly didn't think I'd quite get here because all of the studies on Cyclosporine have it paired with a small dose of prednisone. But I'm so grateful that I didn't have to stay on that pill from Hell. And now I look forward to tapering off Cyclo, as **wonderful** as it has been.
And when I say, "look forward," I mean, "Have a sick, scared, terrified feeling in the pit of my stomach."
I'm super duper excited I'm in remission but am still going through a little bout of depression that comes with every round of labs. Up until this point, I knew what I was fighting for. Now everything is up in the air. Do I keep at my current dose for a while hoping that will help me stay in remission? Do I get off this drug ASAP? Because, lets be honest, its poisoning my body. How long will I get to feel normal & healthy? When will the other shoe drop? Am I going to have to start ALL over again?
I don't know. I don't know at all. All I can do is pray & be grateful for where I am now. Which I am. Happy. Grateful. Blessed.
Thank you for all of your continued prayers.
